Tight Spaces

HAT IS THIS THING?

 This is the HELMET I had to wear when I took Brain Laser Radiation...They Clamp your head down to the table using this Mask Made especially for you...YOU can not move your head at all and in Fact you can Barely close your eyes it fits that tight...Very confining.

The Van

HAT?  $1289.00

Just when my van needed me most I was MIA!

I could have easily purchased a BUS computer from an ebay seller for like $250..Now I don't know if it would have been "programmed" or not BUT Some of those guys are repair guys And the Dodge delearship could do it BUT the  mechanic I used bought an original Mopar part and had it programmed there $700 total...He also installed the O2 sensors I've been driving around in my glove box cause I did not have the upper body Strength  to get those dang things out laying on my back on the ground so he did that...I did not ask about the condition of wiring harness that connects to the BUS...3 big pigtails... that but I did purchase an "ignition" wiring harness from ebay $40....As I suspect there is a short in it due to when I hit a bump the radio light goes off and my turn signals, wiggling the key makes it come back on. IF I recover enough to at some point to install that I will. Its not under the hood it can be done sitting in the van seat...so I'm hopeful.

My sister is getting a transport service to drive her to pick up the van...at 9 am...soooo this whole thing cost $$$$, $160 towing then the rental car we had for a week $400,,,and paying for rides to return the rental and another ride today may be $20...Lordy...AND I will probably be trading or selling the van for a smaller easier to manage vehicle due to my leg which will always have a 3 foot rod in it and probably will never function as before, I don't know... 

Today I am tired I barely slept I cant wait till the Steroids can be stopped I think they cause insomnia...

Annie is doing well she does seem a little depressed so I hope later today after sis returns we are planning to go outside so I can fill bird feeders and enjoy some out time so Annie will take a stroll with me.

So a day in the life of me.

Executive Decision

E MUST BE IN CONTROL...

I know my sis is gonna go Ballistic when I tell her I am not going to have that PET Scan the SC Oncology Acc. has me scheduled for...
I did my research and its a diagnostic tool, it has no bearing on my treatment...and its freaking dangerous in my book.  IT makes the tumors GLOW!! The tumors have been  MRI'd they have been Sized...and located, 

It is suggested to have 8-12 weeks after radiation has been done  IM only 4 weeks Status Post the radiation...

That test fills your body with Nuclear Radiation!! I already have radiation burns in  my mouth throat and the lower right side of jaw...VERY raw and extremely painful..

AND The determination of what drugs to give me in Chemo is made by my Biopsy  and Blood work, not this test SO why subject myself to more injury? I have Non Small Cell Squamish Carcinoma metastatic stage 4 that has already been determined the best treatment is immunotherapy...and it is not exactly curable as the DR told me it would be a life long treatment...But I plan to call it in Dec when I go for my MRI recheck to see if anything shrunk!!

I would  be radioactive for 18 hrs after that scan....SO IM not gonna do it period not at this time!! It is my life and I need no permissions..

Hmmm?

ILL I BE ABLE TO DIY?

My You tube is mostly about my DIY projects  and most are either Homestead chores or Van repairs...I can not currently do the van repair which totally sucks because its a simple fix switch out the BUS or Computer 3 screws!! BUT it was dead in the intersection so we got a tow etc..My tag line on my channel is Another $80 Saved!

But Annie was in desperate need of grooming...so I called Pet Sense

and to shed comb her bath her and do nails $75!!

So today I had my sis set up a table in front of the wicker chair on the screen porch and put Annie up there for me...I got an early start before my leg swells up and I have to Elevate it for hours which means I can do nothing, So I did the shed combing, trimmed her nails and trimmed the long hair on her belly and used a rinse less shampoo to rub thru her coat good as any bath...well pretty much..

So with tax Im Sure its $80 saved...Ka-ching!!

Flossie July 4, 2009 - Sept 6, 2022

ITH A SAD HEART...

Flossie was laid to rest yesterday right by Casey in my Pet Cemetery....She is now at Peace..My lovely companion

Floss

HY NOW?

Well its not enough that I have Stage 4 Cancer my hair fell out after 20 radiation treatments and it has caused other health issues,, that I have a huge hole in my leg and now a 3 ft rod with 3 screws in it...and if I try too stay up doing things...which I can do I can prepare most of my meals but we are taking turns doing meals my sis and I and trying to navigate the medical system,,,Home Nurses calling all odd hours...Physical therapists who don't show up etc...MY poor Floss seems to be on her last leg. Literally she cant walk and even with help she is unable to stand...

We got her in that little compact car Somehow my sis managed and we did a walk in visit to the Vet...IT took 3 hrs total to get her in and out...He x-rayed the hips he said its more arthritis than ACL..

He gave her a steroid injection  and she starts Prednisone tomorrow...But she has not offered to try to stand...or walk...she is incontinent

we have a diaper on her but I don't want her living that way so In the next couple of Days I have a very tough decision...to make...

How can someone's life completely implode in just a few weeks??

I just want a change for the better in some small way!!

AND Annie is showing signs of diabetes, I think my sis is over feeding She had none of these symptoms prior to now...

Why me why now? There is a limit to what one woman can bear.

She was 14 On July 4th...

 

Sept

HEN TO GET BUSY

Well the van got towed it is a holiday weekend so I don't expect anything this week but just getting it to the garage is a big deal...Ive been trying to do more of my own food prep and I made dinner for us both Peppers n Rice.. I need to relearn new ways of moving around in my home so if I do beat this I can resume some normal...I wish be to be able to do that..
I have my MRI recheck Dec 3 So that should tell me if Its growing or retreating!! If its growing I may move to CO so I can do Hospice or they have assisted end of life there...It just depends

Right now I feel pretty good Im able to walk much better using a walker of course and I hope in time to graduate to a rolliator which is more sporty and has a storage pouch for carrying things I had ordered it before I found out about the cancer.

I spent some time on my screen porch yesterday watching birds on the feeders That was nice and I could see most of my flowers Zinnia, Lantana, and Phlox and some peppers are coming on the Red Bell that was attacked by deer in the spring...So maybe I will get one in the end.

Sept I will be 69 in 27 days.

UGHHH

HEN IT RAINS IT POURS..

So on the way home at my last radiation treatment we were 10 away and my van stalled at a light and would not restart..so we had to get a tow home we had done curbside pickup at Walmart Had our groceries in there and my walker so thank goodness a nice tow driver pushed us off the raod then towed us home...so now im dealing with getting it towed to a garage that I trust...and it was supposed to get towed yesterday...BUT that tow guy didnt show up I barely slept last night,

So I called this mornimg and he has shown up I had to put the van in My sons driveway next door my drive way was too narrow for the other truck to make it I saw the red truck arrive so HOPE fully

BUT its  a Holiday weekend so NO clue when it will be done...meanwhile we have a rental which is expensive..

Life continues to HACK me!

Karma seems hell bent.